2022 Pediatric Palliative Care Webinars
January 20, Thursday
Discharge from Hospital to Home: The CAITLYNN Project – a Model of Excellence.Creating and Applying Individualized Transition Plans: Learning Your New Normal
Sue McCarthy, Bereaved Parent & Advocate | Kate Donovan, Boston Children’s Hospital | Denise Currier, Boston Children’s Hospital | Janet Duncan, Courageous Parents Network
February 24, Thursday
An Interdisciplinary Approach to Delivery of Culturally Humble Care – This talk is an interdisciplinary approach to cultural humility in clinical care.
Arshia Madni, St. Jude Children’s Research Hospital | Elizabeth Hawkins, St. Jude Children’s Research Hospital | Sylvia Miranda, Medical Interpreter
March 15, Tuesday
Minute to Minute Mindfulness: Self-care Strategies for Busy Lives – Stress is an inevitable part of life — especially for those of us who are caregivers in our personal and professional lives.
Miriam Stewart | Children’s Hospital of Philadelphia
April 19, Tuesday
Understanding the Emotional Well-Being of Family Caregivers of Children with Medical Complexity – Family caregivers of children with medical complexity (CMC) are responsible for providing and arranging the majority of their child’s care with inadequate support from health care systems.
Justin Yu | Children’s Hospital of Pittsburgh of UPMC
May 17, Tuesday
The Perinatal Palliative Care Birth Plan as an Advance Care Planning Tool – This webinar will highlight the perinatal palliative care birth plan and how it acts as an advance care planning tool for families facing complicated pregnancies and one which has both therapeutic and functional roles in communication and family empowerment.
Amy Brown Schlegel | Nationwide Children’s Hospital and The Ohio State University College of Medicine
June 23, Thursday
Understanding the Lived Experience of Siblings of Children with Significant Neurological Impairment – The results of a phenomenological qualitative study using photo voice to interview sibling/parent dyads to better understand the lived experience of being a sibling to a child with SNI will be discussed.
Danielle Jonas | New York University Silver School of Social Work
July 19, Tuesday
Creating Legacy: Developing End of Life Protocols Following the Death of a Child – In this webinar we will discuss end of life protocols through the lens of creating legacy with the goal to integrate medical practicalities with the wishes, hopes and beliefs of the child and family
Nichole Stangel | Children’s Wisconsin
August 18, Thursday
Conversations Matter: pediatric Advance Care Planning (pACP) and Shared Decision Making with Adolescents Living with a Serious Illness — The FAmily CEntered (FACE) pediatric Advance Care Planning Model – This presentation will describe how to conduct pediatric advance care planning safely, the best timing from the adolescent patient’s perspective, and the immediate and one-year outcomes from participating in the FACE-HIV and FACE-TC randomized clinical trials
Maureen Lyon | Children’s National Medical Center & The George Washington University School of Medicine and Health Sciences
September 22, Thursday
Interprofressional Spiritual Care in Pediatric Palliative Care The presentation will discuss the importance of addressing spiritual health, particularly spiritual distress in the care of pediatric patients with serious illness, and their families…
Christina Puchalski | The George Washington University School of Medicine and Health Sciences
October 18, Tuesday
A Collaborative Approach to Addressing Trauma and Building Resilience in Palliative Care Providers
Colleen Cicchetti | Ann & Robert H. Lurie Children’s Hospital
November 17, Thursday
Palliative Care: A Cloak of Comfort in Sickle Cell Disease – This talk will explore strategies, barriers, and goals for a broader implementation of palliative care for those living with SCD.
Anne Marsh | University of Wisconsin School of Medicine and Public Health