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June 2019
Webinar: Ensuring Psysocial Wellness in School and Community for the Seriously Ill Child with Katy Davis
WEBINAR: Ensuring Psychosocial Wellness in School and the Community for the Seriously Ill Child School is often described as the work of a child. That work is often significantly interrupted by serious or life-limiting illness, hospitalizations and treatments. Despite the inability to maintain an on-going school focus, many seriously ill children continue to want and need opportunities for continued growth and development. Cognitive, emotional, psychological and socialdevelopment continues to be at the core of the child’s self-identity and requires cultivation…
Find out more »July 2019
Webinar: Care of Adolescents and Young Adults with Life-Threatening Illness with Jenny Mack
WEBINAR: Care of Adolescents and Young Adults with Life-Threatening Illness This talk will center on experiences of adolescents and young adults with life-threatening illnesses, including their end-of-life care experiences and their needs for communication and engagement in decision-making. OBJECTIVES: To understand care experiences of adolescents and young adults (AYAs) at the end of life To identify AYA needs for communication about life-threatening illness To consider AYAs’ needs for involvement in decision-making, and clinician behaviors that support their involvement Registration is…
Find out more »September 2019
Webinar: Pain Management for Children with Serious Illness in the Context of the Opiod Epidemic with Stefan Friedrichdorf
Details to come...
Find out more »Butterfly 5k Run Walk & Flutter
To Visit the Race Website Click Here! JOIN US FOR THE BUTTERFLY RUN WALK + FLUTTER Run, Walk or Flutter with us on Sunday, September 22, 2019 to bring families together who are caring for children with life-limiting illness, to celebrate the memory of children who have died and honor those who serve and care for these special children. Can’t be there? BE A VIRTUAL RUNNER! You can still support a runner, support a team and donate to the event.…
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