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June 2021
Supporting Siblings in Non-traditional, Multicultural Families During the End of LIfe
There are a myriad of constellations that make up a family…and, within each family, a unique identity of “sibling”, one that fiercely loves and walks alongside you regardless of the shared or unshared DNA. This webinar presents a unique case study through which participants will discover ways families identify their own family constellation and the identity of each unique sibling. Participants will learn practical and compassionate ways to address the unique experience of those grieving alongside their beloved brothers and sisters. Participants will also learn how to include siblings from diverse backgrounds and how to support them within an interdisciplinary team. Participants will evaluate different methods to support and serve siblings from diverse backgrounds.
Find out more »July 2021
Pediatric Concurrent Care: Research Updates
Until the Patient Protection and Affordable Care Act (ACA) was enacted ten years ago, there were two care choices for children given six months to live: continue treatment or cease treatment and enter hospice. The ACA added a third choice by mandating concurrent care be offered to Medicaid and Children’s Health Insurance Program (CHIP) patients. However, there is limited evidence about the impact of this end-of-life care delivery model on patient and family outcomes. Go to ppcwebinars.org for more information &…
Find out more »Kids Need Care Too!
Sponsored by Coleman Palliative Medicine Training Program & Greater Illinois Pediatric Palliative Care Coalition (GIPPCC) PRESENTERS: Elisha Waldman, MD Ann & Robert H. Lurie Children's Hospital, Chicago, IL Meggan Mikal, CPNP, APN Advocate Children's Hospital, Oak Lawn, IL DESCRIPTION: Build Your Toolkit! Learn the pearls of practice for Adult Hospice and Palliative Medicine Providers who may be asked to help with a pediatric patient in the community setting or during transition of care as a child…
Find out more »August 2021
Increasing Sensitivity in Clinical Practice with the Transgender Population
In clinical practice with the transgender and gender non-conforming population, a historically marginalized and mistreated population, it is vital for clinicians to practice from a place of awareness, education, and cultural humility. This presentation provides a strong foundation of knowledge for educated clinical interactions, including basic terminology, information about the disparities faced by this population, and guidance for engaging in sensitive clinical practice with cultural humility, including at end-of-life, and establishing safer environments, both in healthcare settings and when care…
Find out more »September 2021
Beyond Words: Using Expressive and Integrative Therapies as Communication
Children experience their world through play, creativity, and imagination. It is how they learn and process, and provides mastery over their environment. Play becomes all the more important when faced with adversity or trauma. In a medical setting, expressive therapies can be used to help children understand and process their illness and can even have a tangible effect on their physical symptoms and overall wellness. This course will provide an introduction to the broad range of expressive therapy options that…
Find out more »October 2021
2021 Butterfly Run, Walk + Flutter
Save the Date! October 3, 2021 Details Coming Soon!
Find out more »Bereaved Parents View on End-of-Life Care
Despite an increase in specialized pediatric palliative care programs there remain inadequacies in end of life (EOL) care for children. This presentation will review the perspectives of 28 Spanish- and English-speaking bereaved parents who detailed qualitative experiences about their children’s end of life care. Parents’ perspectives from the study highlight the importance of 1) supporting home death and low medical intensity of EOL care, 2) policies/programs that allow families to spend as much time with their child at EOL as…
Find out more »Partnering in Caring for Kids & Young Adults with Muscular Dystrophy
PRESENTERS: Neha Kramer, MD, Rush University Medical Center, Chicago IL Peter Butzen, APRN-NP, PNP, and Jenny Mayer, APRN-NP, Lurie Children's Hospital, Chicago, IL Sponsored by Coleman Palliative Medicine Training Program & Greater Illinois Pediatric Palliative Care Coalition (GIPPCC) More Details Coming Soon...
Find out more »November 2021
Alternative Payment Strategies to Enhance Access to Pediatric Palliative
With the growing emphasis on value-based payments in healthcare, there is significant potential for enhanced access to pediatric palliative care services. This discussion will highlight the challenges to access of PPC services in traditional reimbursement models, and it will discuss existing state models that have been developed. Finally, a process for exploring policy and legislative opportunities to develop alternative payment strategies will be discussed. Go to ppcwebinars.org for more information & to register!
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