Bereaved Parents View on End-of-Life Care

Despite an increase in specialized pediatric palliative care programs there remain inadequacies in end of life (EOL) care for children. This presentation will review the perspectives of 28 Spanish- and English-speaking bereaved parents who detailed qualitative experiences about their children’s end of life care. Parents’ perspectives from the study highlight the importance of 1) supporting home death and low medical intensity of EOL care, 2) policies/programs that allow families to spend as much time with their child at EOL as possible, and 3) continuing care at EOL and beyond.

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