Events Search and Views Navigation
June 2019
Webinar: Ensuring Psysocial Wellness in School and Community for the Seriously Ill Child with Katy Davis
WEBINAR: Ensuring Psychosocial Wellness in School and the Community for the Seriously Ill Child School is often described as the work of a child. That work is often significantly interrupted by serious or life-limiting illness, hospitalizations and treatments. Despite the inability to maintain an on-going school focus, many seriously ill children continue to want and need opportunities for continued growth and development. Cognitive, emotional, psychological and socialdevelopment continues to be at the core of the child’s self-identity and requires cultivation…
Find out more »July 2019
Webinar: Care of Adolescents and Young Adults with Life-Threatening Illness with Jenny Mack
WEBINAR: Care of Adolescents and Young Adults with Life-Threatening Illness This talk will center on experiences of adolescents and young adults with life-threatening illnesses, including their end-of-life care experiences and their needs for communication and engagement in decision-making. OBJECTIVES: To understand care experiences of adolescents and young adults (AYAs) at the end of life To identify AYA needs for communication about life-threatening illness To consider AYAs’ needs for involvement in decision-making, and clinician behaviors that support their involvement Registration is…
Find out more »September 2019
Webinar: Pain Management for Children with Serious Illness in the Context of the Opiod Epidemic with Stefan Friedrichdorf
WEBINAR: Pain Management for Children with Serious Illness in the Context of the Opioid Epidemic We live in one world, which is divided by two opioid crises: Much of the world suffers not from abuse of opioids, but absence of them. Withholding evidence-based analgesia to children with serious illness is not only unethical, but causes immediate and long-term harm. Opioids are associated with many side effects and are potentially lethal - but, no other analgesics equal in potency and…
Find out more »Butterfly 5k Run Walk & Flutter
To Visit the Race Website Click Here! JOIN US FOR THE BUTTERFLY RUN WALK + FLUTTER Run, Walk or Flutter with us on Sunday, September 22, 2019 to bring families together who are caring for children with life-limiting illness, to celebrate the memory of children who have died and honor those who serve and care for these special children. Can’t be there? BE A VIRTUAL RUNNER! You can still support a runner, support a team and donate to the event.…
Find out more »October 2019
Webinar: An Expense Worth Expressing: The Role Of Expressive Arts in Pediatric Palliative Care with Debra Lotstein
WEBINAR: An Expense Worth Expressing: The Role of Expressive Arts in Pediatric Palliative Care In this presentation, Dr. Lotstein and Ms. Albers, will share ways that Expressive therapies can increase the quality of life of children with serious illness and their families. They will also describe how these therapies can impact care provided by the rest of the interdisciplinary team, and review ways that Palliative care providers might highlight the value of the expressive therapies to payors. OBJECTIVES:…
Find out more »PRESENT IN THE ROOM: Partnering with Families of Seriously Ill Children from Diagnosis Through Their Journey into Grief
Featuring Blyth Lord, Courageous Parents Network CLICK HERE TO REGISTER NOW! Where: Feinberg Pritzker Auditorium/Northwestern 251 E. Huron Street, Chicago, IL 60611 Validated Parking Available at the Huron Superior Garage or the Erie Ontario Garage. Cost: FREE TO LURIE CHILDREN’S EMPLOYEE Registration necessary for free breakfast/lunch $50 Community Partners Payable through online link or by check payable to GIPPCC 848 Dodge Avenue, Suite 231, Evanston, IL 60202 Blyth Lord is the founder and Executive…
Find out more »November 2019
Webinar: Compatible with Life: Rethinking Care of Children with Trisomy 18 with Nicole Hahnlen & Deanna Deeter
Many patients diagnosed with Trisomy 18 are living longer than once predicted. What has changed in this population? This session will highlight current research on Trisomy 18 and explore opportunities for providing meaningful care in a patient population fraught with difficult decision-making and uncertain outcomes. OBJECTIVES: Describe clinical features and contemporary outcomes for children with Trisomy 18 Discuss factors influencing decision-making for both families and professionals Identify challenges in providing medical care to children with Trisomy 18 that is…
Find out more »January 2020
Webinar: Decoding Decision-Making with Families
REGISTER HERE! DECODING DECISION-MAKING WITH FAMILIES Providers and parents want to make the “best” decisions for a child with a serious illness. Ideally in shared decision-making, providers and families each have space to give and receive information, articulate and consider the options before them, and to discuss their thoughts and feelings honestly and respectfully.This process is not straight-forward and is filled with thinking and logic alongside emotion and hope. How can we participate meaningfully? How can we deconstruct…
Find out more »February 2020
Webinar: Can Compassion Fatigue?
To register and more information go to: ppcwebinars.org
Find out more »April 2020
Pediatric Palliative Care & COVID-19 Town Hall Meeting
We invite you to join us for a town hall style meeting to discuss issues surrounding COVID-19 and pediatric palliative care. Due to the pandemic, we have decided to postpone the April topic: Together in the Sandbox with Dr. Sarah Friebert to a date to be determined. The interactive discussion of issues surrounding COVID-19 and pediatric palliative care will take place at the same time and date as the originally scheduled webinar: Tuesday, April 21 from 12-1pm PST/1-2pm MST/2-3pm CST/3-4pm EST. Dr. Sarah Friebert will moderate an…
Find out more »