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November 2019
Webinar: Compatible with Life: Rethinking Care of Children with Trisomy 18 with Nicole Hahnlen & Deanna Deeter
Many patients diagnosed with Trisomy 18 are living longer than once predicted. What has changed in this population? This session will highlight current research on Trisomy 18 and explore opportunities for providing meaningful care in a patient population fraught with difficult decision-making and uncertain outcomes. OBJECTIVES: Describe clinical features and contemporary outcomes for children with Trisomy 18 Discuss factors influencing decision-making for both families and professionals Identify challenges in providing medical care to children with Trisomy 18 that is…
Find out more »January 2020
Webinar: Decoding Decision-Making with Families
REGISTER HERE! DECODING DECISION-MAKING WITH FAMILIES Providers and parents want to make the “best” decisions for a child with a serious illness. Ideally in shared decision-making, providers and families each have space to give and receive information, articulate and consider the options before them, and to discuss their thoughts and feelings honestly and respectfully.This process is not straight-forward and is filled with thinking and logic alongside emotion and hope. How can we participate meaningfully? How can we deconstruct…
Find out more »February 2020
Webinar: Can Compassion Fatigue?
To register and more information go to: ppcwebinars.org
Find out more »April 2020
Pediatric Palliative Care & COVID-19 Town Hall Meeting
We invite you to join us for a town hall style meeting to discuss issues surrounding COVID-19 and pediatric palliative care. Due to the pandemic, we have decided to postpone the April topic: Together in the Sandbox with Dr. Sarah Friebert to a date to be determined. The interactive discussion of issues surrounding COVID-19 and pediatric palliative care will take place at the same time and date as the originally scheduled webinar: Tuesday, April 21 from 12-1pm PST/1-2pm MST/2-3pm CST/3-4pm EST. Dr. Sarah Friebert will moderate an…
Find out more »September 2020
October 2020
2020 Virtual Butterfly Run, Walk + Flutter
This year - we’re going virtual! We are excited to announce that we will be continuing the Butterfly Run Walk & Flutter during these unprecedented times. Staying connected to our community is more important than ever. We encourage all participants to run/walk with their families or in a socially distant manner. Lace up your shoes and walk to remember!
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