Past Events

WEBINAR: Providing Spiritual Care with Pediatric Patients In this presentation we will discuss the role of the Chaplain in working with the interdisciplinary team as well as how we go about providing spiritual care to pediatric patients and other children in the family system.  Additionally, we will discuss faith development by age and stage, as well as practical and creative ways to engage pediatrics in conversations around their own spirituality and emotions. OBJECTIVES: To better understand the role and function…

WEBINAR: Ensuring Psychosocial Wellness in School and the Community for the Seriously Ill Child School is often described as the work of a child.  That work is often significantly interrupted by serious or life-limiting illness, hospitalizations and treatments.  Despite the inability to maintain an on-going school focus, many seriously ill children continue to want and need opportunities for continued growth and development.  Cognitive, emotional, psychological and socialdevelopment continues to be at the core of the child’s self-identity and requires cultivation…

WEBINAR: Care of Adolescents and Young Adults with Life-Threatening Illness This talk will center on experiences of adolescents and young adults with life-threatening illnesses, including their end-of-life care experiences and their needs for communication and engagement in decision-making. OBJECTIVES: To understand care experiences of adolescents and young adults (AYAs) at the end of life To identify AYA needs for communication about life-threatening illness To consider AYAs’ needs for involvement in decision-making, and clinician behaviors that support their involvement Registration is…

  WEBINAR: Pain Management for Children with Serious Illness in the Context of the Opioid Epidemic We live in one world, which is divided by two opioid crises: Much of the world suffers not from abuse of opioids, but absence of them. Withholding evidence-based analgesia to children with serious illness is not only unethical, but causes immediate and long-term harm. Opioids are associated with many side effects and are potentially lethal - but, no other analgesics equal in potency and…

  WEBINAR: An Expense Worth Expressing:  The Role of Expressive Arts in Pediatric Palliative Care In this presentation, Dr. Lotstein and Ms. Albers, will share ways that Expressive therapies can increase the quality of life of children with serious illness and their families. They will also describe how these therapies can impact care provided by the rest of the interdisciplinary team, and review ways that Palliative care providers might highlight the value of the expressive therapies to payors.   OBJECTIVES:…

  Many patients diagnosed with Trisomy 18 are living longer than once predicted. What has changed in this population? This session will highlight current research on Trisomy 18 and explore opportunities for providing meaningful care in a patient population fraught with difficult decision-making and uncertain outcomes.  OBJECTIVES: Describe clinical features and contemporary outcomes for children with Trisomy 18 Discuss factors influencing decision-making for both families and professionals Identify challenges in providing medical care to children with Trisomy 18 that is…