Many patients diagnosed with Trisomy 18 are living longer than once predicted. What has changed in this population? This session will highlight current research on Trisomy 18 and explore opportunities for providing meaningful care in a patient population fraught with difficult decision-making and uncertain outcomes.
- Describe clinical features and contemporary outcomes for children with Trisomy 18
- Discuss factors influencing decision-making for both families and professionals
- Identify challenges in providing medical care to children with Trisomy 18 that is congruent with the family’s identified goals