Greater Illinois Pediatric Palliative Care Coalition

(844) 944-7722

Articles tagged with Webinar

Partnering in Caring for Kids & Young Adults Living with Muscular Dystrohpy

 

Sponsored by Coleman Palliative Medicine Training Program &
Greater Illinois Pediatric Palliative Care Coalition (GIPPCC)

November 30, 2021
12:00pm – 1:00pm   CST

OBJECTIVES:

  • Describe muscular dystrophies and their variable prognoses and disease trajectories
  • Manage frequently seen symptoms using pharmacological and nonpharmacological techniques
  • Evaluate the role of palliative care along the continuum of disease

AUDIENCE: 
Physicians, advance practice nurses, nurses, physician assistants, respiratory therapists, rehabilitation therapists, psychologists, social workers, child life, expressive therapies,  chaplains and students

 

Click Here for FREE Registration!

Alternative Payment Strategies to Enhance Access to Pediatric Palliative

With the growing emphasis on value-based payments in healthcare, there is significant potential for enhanced access to pediatric palliative care services. This discussion will highlight the challenges to access of PPC services in traditional reimbursement models, and it will discuss existing state models that have been developed. Finally, a process for exploring policy and legislative opportunities to develop alternative payment strategies will be discussed.

Go to ppcwebinars.org for more information & to register!

Bereaved Parents View on End-of-Life Care

Despite an increase in specialized pediatric palliative care programs there remain inadequacies in end of life (EOL) care for children. This presentation will review the perspectives of 28 Spanish- and English-speaking bereaved parents who detailed qualitative experiences about their children’s end of life care. Parents’ perspectives from the study highlight the importance of 1) supporting home death and low medical intensity of EOL care, 2) policies/programs that allow families to spend as much time with their child at EOL as possible, and 3) continuing care at EOL and beyond.

Go to ppcwebinars.org for more information & to register!

Increasing Sensitivity in Clinical Practice with the Transgender Population

In clinical practice with the transgender and gender non-conforming population, a historically marginalized and mistreated population, it is vital for clinicians to practice from a place of awareness, education, and cultural humility. This presentation provides a strong foundation of knowledge for educated clinical interactions, including basic terminology, information about the disparities faced by this population, and guidance for engaging in sensitive clinical practice with cultural humility, including at end-of-life, and establishing safer environments, both in healthcare settings and when care providers are in the home.

Go to ppcwebinars.org for more information & to register!

Pediatric Palliative Care Pearls for Adult Hospice and Palliative Care Providers 

 

 

 

 

Sponsored by Coleman Palliative Medicine Training Program &
Greater Illinois Pediatric Palliative Care Coalition (GIPPCC)

CLICK HERE TO REGISTER FOR FREE!

PRESENTERS:

Elisha Waldman, MD
Ann & Robert H. Lurie Children’s Hospital, Chicago, IL
Meggan Mikal, CPNP, APN
Advocate Children’s Hospital, Oak Lawn, IL

DESCRIPTION:

Build Your Toolkit!     Learn the pearls of practice for Adult Hospice and Palliative Medicine Providers who may be asked to help with a pediatric patient in the community setting or during transition of care as a child ages out of pediatric palliative care.   And how to collaborate with pediatric teams to build competencies and confidence in caring for kids.

OBJECTIVES:
• Identify situations when adult providers might be called upon to provide pediatric care
•Learn key interventions for pain & symptom management of pediatric-specific issues
• Understand how developmental stages & underlying conditions impact issues around communication and decision making for pediatric families
• Describe important legal issues that impact provision of care for children & young adults in hospice & palliative medicine

 

Pediatric Concurrent Care: Research Updates

Until the Patient Protection and Affordable Care Act (ACA) was enacted ten years ago, there were two care choices for children given six months to live: continue treatment or cease treatment and enter hospice. The ACA added a third choice by mandating concurrent care be offered to Medicaid and Children’s Health Insurance Program (CHIP) patients. However, there is limited evidence about the impact of this end-of-life care delivery model on patient and family outcomes.

Go to ppcwebinars.org for more information & to register!

Supporting Siblings in Non-traditional, Multicultural Families During the End of LIfe

There are a myriad of constellations that make up a family…and, within each family, a unique identity of “sibling”, one that fiercely loves and walks alongside you regardless of the shared or unshared DNA. This webinar presents a unique case study through which participants will discover ways families identify their own family constellation and the identity of each unique sibling. Participants will learn practical and compassionate ways to address the unique experience of those grieving alongside their beloved brothers and sisters. Participants will also learn how to include siblings from diverse backgrounds and how to support them within an interdisciplinary team. Participants will evaluate different methods to support and serve siblings from diverse backgrounds.

Go to ppcwebinars.org for more information & to register!

 

Hoping for the Best- Planning for the Worst: Understanding Concurrent Care for Children and How to Improve Care for Seriously Ill Children in Illinois

DATE & TIME:
April 13th, 2021
12:00pm – 1:00pm CST

Cost:  FREE

PRESENTERS:   
Kristin James LCPC
Executive Director, Greater Illinois Pediatric Palliative Care Coalition (GIPPCC)

Jennifer Mangers MHA, MS, CCLS
Pediatric Team Manger, Journeycare

Ellen Byrne MPP
Public Policy Consultant, Illinois Hospice and Palliative Care Organization (ILHPCO)

DESCRIPTION:
Families no longer need to choose.  The Affordable Care Act, Section 2302, Concurrent Care for Children, allows children to continue to receive curative-focused and life-prolonging therapies in conjunction with the specialized support of hospice care.   While this is a positive step forward in obtaining better care for seriously ill children, there continues to be confusion and limited awareness of the provision among pediatric clinicians, hospice providers, and state Medicaid programs in Illinois. This webinar will offer practical tips and case studies to illustrate how  Concurrent Care and collaboration from hospital to home can improve the management of symptoms and provide support to seriously ill children and their families.

OBJECTIVES:

  • Describe Concurrent Care for Children as defined in ACA 2302 and the opportunity for collaboration amongst hospital teams, subspecialist providers, and home-based care
  • Review common profiles of children that would benefit from Concurrent Care for Children and techniques to introduce the program to families
  • Identify challenges and benefits in utilizing Concurrent Care for Children
  • Discuss administrative procedures for billing and reimbursement for Concurrent Care with Illinois Medicaid Health Plans
AUDIENCE:
Multidisciplinary Teams and Billing Specialists from Hospice Providers, Home Health Agencies, and Pediatric Healthcare Systems.

IL-HPCO and GIPPCC share the mission to expand access to exceptional palliative and end-of-life care in the state of Illinois, through education, advocacy, strategic partnerships and technical and supportive services. Join us for this unique opportunity to partner together in improving the care for our most seriously ill children and ensuring our teams have the skills and confidence to care for families at one of their most vulnerable moments.