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Online Resources

Resources in Your Area

  • Pieces of the Puzzle
  • Normal Moments
  • CHECK  Coordination of Health Care for Complex Kids
  • Resource map – Call GIPPCC for referrals

Family Stories – Resources & Videos

  • Courageous Parents Network
  • Together for Short Lives
  • Little Stars
  • Experience Journal/Children’s Hospital Boston
  • Disabled Childrens Partnership/UK
  • Get Palliative Care
  • Centering Corporation Bookstore
  • Compassion Books

Perinatal Palliative Care

  • Perinatal Hospice

Following the Death of Your Child

  • Bereavement Resources – Coming soon. Please call or email.
  • Grief Education Handouts – Coming soon. Please call or email.

Other

  • When Your Child is in Pain
  • Talking With Your Child About His or Her Illness
  • Voicing My Choices: A Planning Guide for Adolescents & Young Adults
  • My Wishes
  • Talking with your Child’s Doctor
  • When a Child Dies: A Guide for Family and Friends
  • Conversation Matters Palliative Care for Children – Guidebook Support for the Whole Family When Your Child Is Living with a Serious Illness
  • Conversation Matters Family Stories
  • Making Critical Care Choices for your Child
  • Child Tracheostomy Decision Guide
  • Advanced Cancer: Caring for your Child
  • Cerebral Palsy Guide

GREATER ILLINOIS PEDIATRIC
PALLIATIVE CARE COALITION

18W140 Butterfield Rd., Suite 1120, Oakbrook Terrace, IL 60181
312-741-1283 | admin@gippcc.org

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