Resources in Your Area
- Pieces of the Puzzle
- Normal Moments
- CHECK Coordination of Health Care for Complex Kids
- Resource map – Call GIPPCC for referrals
Family Stories – Resources & Videos
- Courageous Parents Network
- Together for Short Lives
- Little Stars
- Experience Journal/Children’s Hospital Boston
- Disabled Childrens Partnership/UK
- Get Palliative Care
- Centering Corporation Bookstore
- Compassion Books
Perinatal Palliative Care
Following the Death of Your Child
- Bereavement Resources – Coming soon. Please call or email.
- Grief Education Handouts – Coming soon. Please call or email.
Other
- When Your Child is in Pain
- Talking With Your Child About His or Her Illness
- Voicing My Choices: A Planning Guide for Adolescents & Young Adults
- My Wishes
- Talking with your Child’s Doctor
- When a Child Dies: A Guide for Family and Friends
- Conversation Matters Palliative Care for Children – Guidebook Support for the Whole Family When Your Child Is Living with a Serious Illness
- Conversation Matters Family Stories
- Making Critical Care Choices for your Child
- Child Tracheostomy Decision Guide
- Advanced Cancer: Caring for your Child
- Cerebral Palsy Guide