Creating a network for providers, doctors, nurses, support services, families, and community leaders to share ideas, information, and resources with each other
CLINICAL CONSULTATION is available with GIPPCC Team PHYSICIANS< APNs<FAMILY SUPPORT TEAMS
- Pain & Symptom Management
- Billing Guidelines
- Resources & Referrals Supporting Continuity of Care
- Collaboration across care-settings with experts throughout the state and nationally
- Coleman Foundation Supportive Oncology
- ARCC NEST Parent- Child Assessment Tool
- ARCC Bereavement Support
A section of the Affordable Care Act called “Concurrent Care for Children” mandates that children who are in a Medicaid Program and are eligible for hospice care can continue to receive coverage for curative, disease-directed therapies while also benefiting from the specialized support from the hospice team. Families no longer need to choose between treatments that might help their child’s life-threatening condition and care that would help their child feel as comfortable and supported as possible at the end of her life.
This fellowship model opens access to PPC and supportive care for communities previously unreached in Illinois. Additionally, it allows clinicians who live in the area, and are familiar with the regional culture and resources, to become PPC experts and advocates. The yearlong mentorship program discipline-matched mentee for one-on-one guidance. The mentorship includes shadowing experiences, personalized home study curriculum, formal national and regional education program attendance and a guided program improvement element, to enhance care at the fellow’s home institution.
Why It’s Important:
- Better Outcomes, Lower Costs, Family Satisfaction (UCLA Center for Health Policy Research)
- Nearly 14% of children ages 0-17 have special health care needs (NHPCO)
- Each year, approximately 1,185 Illinois children are newly diagnosed with a life-limiting illness
- Over 1,400 children die each year in Illinois
- 11% reduction in average cost when children receive palliative care services
- Improved Quality of Life for the child and the family
- Less than 1% of children who could benefit from Palliative Care actually receive it (Children’s International Study)
Our goal is to work together to ensure that the state’s most vulnerable children have the quality care that they deserve.